Around 22 years ago, that chubby little face on the right was diagnosed with Burkitt's syndrome, a type of Non-Hodgkins lymphoma. That little boy is my older brother, Ryan Joseph Coyle, and he was only 2 years old when my parents found a tumor on his neck about the size of a baseball. Burkitt's lymphoma comes in 3 major types- one of which is common in Africa, and one of which is common in AIDS patients, so my brother was also tested for HIV. My brother's diagnosis was a VERY rare case: there are only about 300 cases each year, most cases arise in boys age 4-20, and most tumors are abdominal. At the same time all of this was going on, my mom was also pregnant with me. Needless to say- it was a pretty scary and hospital-filled time for my family.
Ryan had surgery to remove his tumor, but since Burkitt's lymphoma is a very aggressive cancer, he was also placed on a "maintenance" plan. This plan included long-term, repeated doses of medicines that would keep the tumor from coming back, but there were unknown side effects for 30+ years. My parents were concerned about the risk of additional cancers in someone so young, and so Ryan was put in a clinical trial so that he would only need to take the medicine if the cancer came back. My parent's took a risk with the clinical trial, though- would it be as effective as the other treatment? Would the tumor return?
Luckily, the treatment worked, and Ryan has now been in remission for nearly 22 years. His only post-cancer issues have been a slightly higher susceptibility to sickness due to a missing lymph node.
Without a successful treatment plan, I never would have met my brother. Organizations like the American Cancer Society help fund research that leads to clinical trials like Ryan's.
I Relay to celebrate Ryan's life, but I also Relay to keep that funding going, so that other families can be as fortunate as mine.